The Patient’s Guide to Finding
Expert
Eating Disorder Care-Providers
By Abigail Natenshon MA,
LCSW, GCFP (North American Serial Rights)
Eating disorders are
complex, diverse, and multi-faceted diseases, affecting every aspect of
personality and life function, including emotions and behaviors,
cognition and mood, nutrition and physiology, relationships and
self-image. Treatment leaves little margin for error; if not dealt with
in a timely and effective manner, these diseases are debilitating and
can be fatal. When treated properly, full recovery can be anticipated in
80 percent of cases.
The Therapist’s
Treatment Style
Expert care-givers need
to be eclectic and versatile in what they know and how they use
themselves in approaching treatment for an eating disorder. Within the
course of treatment, effective eating disorder practitioners will show
themselves to be:
· “Big
picture” thinkers,
with the capacity to hold fast to the vision of a far reaching recovery
even as they systematically attend to the small details of ongoing
treatment.
· Integrationists
with a firm grasp on the wider implications of disease, and functioning
as part of a multi-disciplinary team of professionals, practitioners
need broad-based diagnostic acumen, diverse practice skills, and the
capacity and willingness to access varied treatment support resources.
·
Activists,
urging
parents and families to participate in treatment, educating clients, and
shepherding the healing process forward.
· Bottom-liners,
outcome-driven, expecting and demanding that the recovery progress keeps
up with the pace of a disease that is perpetually on the move. (If the
patient is not getting better, you can be assured she is getting worse.)
·
Loving
caretakers,
unafraid to use themselves creatively and openly as strong connectors,
building self-esteem and inspiring the motivation to heal.
The Initial Telephone
Inquiry
Once a problem has been
recognized, the next challenge is to find a practitioner who can
effectively connect with patient and family, and direct
the recovery process. The best referrals will come from people you
know…friends, your child’s pediatrician, school counselors, or from
national eating disorder organizations such as NEDA or ANAD. In
addition, a reliable and internationally-based referral source is the
Internet, through web sites such as
www.EDReferral.com or
www.Find-a-Therapist.com.
In assessing the qualifications of potential therapists, the
knowledgeable patient needs to be prepared to conduct an informal
telephone interview. Your s practitioner should be willing to engage
with you on the phone to answer your questions, thereby beginning the
education process. This first meaningful interchange should reveal
elements of the therapist’s personality, treatment approach, and
willingness to be forthcoming, inclusive, and educative.
The phone conversation
might begin with the question, “Is this a good time for me to ask you a
few questions?” If not, make arrangements to call back at a more
convenient time. Don’t hesitate to ask about his or her professional
background and experience in treating eating disorders; in many cases,
their experience and reputation will precede them. Notice whether the
clinician is listening closely to you. The best therapists have a way of
listening with a “third” ear, of providing answers not only to the
questions you ask, but also to those that you may not yet have the words
or knowledge to formulate. The therapist should give you the sense that
by becoming your ally, he or she is becoming your child’s recovery
advocate. Expert caregivers will be knowledgeable and educative, caring
and forthcoming, imparting knowledge, offering a sense of where you and
your child are in the disease and recovery processes, and of what needs
to happen next, laying out alternatives for care provision.
The following are
questions that might guide your inquiry:
·
Ask about the
benefits of outpatient therapy versus treatment in a hospital or day
program.
·
Inquire about the
therapist’s treatment style or philosophy and then listen for such words
as eclectic, cognitive-behavioral, psychodynamic,
relationship-oriented, and family-systems based. Does this
person have a philosophy of eating disorder treatment that focuses on
both the dysfunctional behaviors and the emotions driving them?
·
Does this person
recognize medical issues that may be serious and require immediate
attention or hospitalization? Does this person suggest that you be
seen by a medical doctor for an evaluation as a first priority of care?
·
Does
this person collaborate with skilled professionals as part of a
treatment team? If not, the task of creating such a team may fall to you
as the parent. Do you get the impression that you can count on this
person for cooperation and guidance?
·
Does this person
request that you procure the services of a nutritionist for yourself and
possibly a psychopharmacologist where needed, as part of a
multi-disciplinary approach to care?
·
Will parents and
family be invited to partifcipate in treatment where appropriate and
agreed upon as mentors for the recovery process?
·
Does the
professional work with insurance companies? Does he/she offer
pointers about how to secure optimized insurance coverage and is he/she
willing to intervene in your favor with insurance companies? Does
the person offer a sliding pay scale if needed?
·
Does this person
reassure you that eating disorders are highly curable diseases if
treated in a timely and effective fashion?
If a therapist implies
that generic therapy techniques are sufficient to heal an eating
disorder, or that these are not fully curable, hang up the phone and
seek help elsewhere. Your educated and responsible responsiveness and
sound judgment could save your
life.
In search of the
multi-disciplinary team
As integrative diseases,
eating disorders are most effectively addressed by an integrative,
collaborative, multidisciplinary team of professionals.
The outpatient eating disorder
treatment team should include patient and family where appropriate, as
well as an individual and family therapist (who, in most cases, should
be the same person), a nutritionist, a medical doctor and a medicating
psychiatrist. School personnel for young adults and hospital staff may
also be helpful additions to the team. The nature of participation of
these various disciplines will vary from case to case and from stage to
stage of treatment and recovery. Though certain disciplines may not be
active at a particular point in treatment, this does not minimize their
potential for influence and involvement later, should the need arise.
Patients typically express concern that involving several professionals
will be costly. In reality the team approach is so comprehensive and
effective, it invariably proves to be the least time-consuming and most
cost-effective form of treatment. A treatment team is more likely to get
results, and to get them faster, more efficiently, and more sustainably.
In Seeking Effective Health
Professionals…
Do not be taken
in or misled by health professionals who:
-
May not be familiar
with the unique protocols of eating disorder treatment.
-
Believe that parents
are at fault.
-
Do not appreciate
how eating disorder issues are generally shared by the family, and
understand the potentially positive impact an enlightened family
system can have on the child’s recovery.
-
Do not envision
treatment as a partnership among patient, professionals and parents.
-
Do not understand
the importance of the integration of techniques and methodologies
and milieus in the treatment of these disorders.
-
Do not understand
the importance of the trusting, sound and loving therapeutic
relationship, enabling “tough-love” expectations, demands and
limit-setting throughout the treatment process.
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