The need for this book
During the four decades of my psychotherapy practice, close to 90
percent of my patients have struggled with eating disorders. Most have
arrived in my office as therapy "veterans" who have already been around
the treatment block, in some cases for months or years, in and out of
multiple treatment milieus and therapy relationships, where they have
met with partial or otherwise unsuccessful outcomes. Time-worn and
weary, they bring a learned sense of failure, frustration, and defeat
from their past struggles. Describing themselves as "a day late and a
dollar short," they feel hopeless and fearful about their capacity for
change, unprepared to tackle the tasks of ED recovery in the face of a
disorder that compromises life quality, internal resources and emotional
development. Parents of ED patients, guilt-laden about their own 'failed
efforts,' typically believe that their child's eating disorder is
incurable, and fear for the child's very survival. Doing What Works
promises to alter this picture, to change the face of ED treatment; in
so doing, it offers hope and recovery to so many sufferers.
The practitioner's dilemma
The field of ED treatment is still in its adolescence, as are so many of
our patients. ED treatment techniques continue to evolve, leaving
practitioners at a loss for what may be considered "best practice"
principles and how to apply them. In the face of the treatment field's
crisis of identity, clinicians find themselves very much on their own,
seeking to find their own way as formal training mechanisms continue to
elude us. Our work is at once enriched, and compromised, by the
divergent viewpoints of clinicians and researchers and by a sense of
benign chaos that arises out of an immense yet diffuse diversity of
approaches, limited resources, and in some cases, personal biases and
misunderstanding of ED and their unique requirements for treatment.
Is this book for you?
Whether you specialize in ED treatment, engage with an occasional ED
patient, or choose not to treat ED at all, every therapist,
nutritionist, medical doctor, psychiatrist, physical trainer and school
counselor should be prepared to recognize their elusive signs, address
their urgency, and refer the patient for care. Highly lethal disorders
leave little margin for error in diagnosis and treatment; the earlier
these diseases are recognized, the better the prognosis for recovery and
the possibility of prevention. ED are likely to exist as undisclosed
co-occurring syndromes underlying other conditions for which the patient
does seek care. Patients, families, friends, but most of all,
practitioners need to recognize and understand the risks of allowing ED
to go untreated.
Fixing what is Broken
ED are the most lethal of all the mental health disorders, killing from
six to 13 percent of their victims, 87 percent of whom are under the age
of 20. The sad irony is that these diseases all too frequently go
unrecognized by doctors and therapists. When they are treated, more
often than not they are treated ineffectively. When treatment does not
work, the finger of blame invariably gets pointed towards the disease
itself through the misconception that eating disorders are 'incurable;'
towards an 'impossible to treat' patient population; or towards parents
of child patients for having caused the problem or for not addressing it
sooner. The reality is that when treatment outcomes are less than
successful or when they fail, it is all too frequently not the patient
or family, but the well-intentioned (and otherwise competent) health
professional who drops the ball through acts of misunderstanding,
commission or omission. That, of course, is the best news of all, being
that it is within our capacity as professionals and as human beings to
learn and to change. Though treatment failure with ED is often the
result of biological, neurological or environmental factors that lie
beyond the practitioner's control, most treatment tasks lie clearly
within the purview and capacity of the psychotherapist, the patient and
the ED treatment team to solve.
Even when competent in the general practice of psychotherapy, most
therapists are untrained and unprepared to recognize and face the unique
requirements and challenges that set this treatment specialty apart.
Unfortunately, there are precious few places where clinicians can go to
learn the science of this art. Current literature in the field focuses
on evidence-based research, ignoring the application of this research to
clinical practice. By failing to recognize what they do not know,
practitioners typically resort to 'default' modes of care, doing what
they know best, which may or may not effectively apply to the treatment
of ED, the costs to patients and families are exorbitant, and
opportunities lost; tragically, in some cases, leading to lost lives.
Students and novice ED practitioners hunger to learn what to do with
these patients. Trained clinicians who already bring skills and mastery
to the task seek to hone their skills and learn more. By offering a
meaningful and practicable system of care, this book douses the fires of
professional fear and resistance to ED treatment, inspiring enough
interest and know-how within the treatment community to fill the
shortages in the treatment ranks with competent ED experts. It also
encourages dialogue between practitioners and among researchers and
clinicians, facilitating the collaboration of existing resources within
our communities.
What this book does
" Doing What Works educates and empowers clinicians who have been
reluctant to treat disorders, while offering affirmation and legitimacy,
alternative treatment solutions, and a novel perspective, to highly
experienced and seasoned ED practitioners.
" It provides a unique opportunity for the multi-disciplinary treatment
team to better understand and facilitate each others roles, enabling
enhanced collaboration.
" It provides parents a practicable bird's eye view and understanding of
treatment dynamics, preparing them to know what to expect, (and what to
demand,) in their role as advocates for their child's care.
" Doing What Works integrates what we know, and establishes what we need
to learn, in finding a better way to treat ED.
" Highlight the professional's use of self and relationship on the
front-lines of care, harnessing the provider's internal strengths to
evoke the patient's optimal potential.
The contents of this book go beyond knowing to doing; beyond formulas to
directives for action; and beyond knowledge to wisdom; in seeking
outcomes. The book offers professional readers practical, usable,
behaviorally-based tools ironically similar in nature to those that
professionals seek to offer their recovering patients. Most
significantly, the book fosters healing connections, horizontally,
between the recovering patient and the world around her as she socially
and emotionally re-unites with loved ones and reality; and vertically,
by accessing the patient's connections to the strength and potential of
her own resourceful self.
As a treatment 'GPS' mapping out the most accessible and workable
routes, Doing What Works alerts and prepares the entire
multi-disciplinary treatment team, including patients and parents, to
anticipate and bypass inevitable detours and pitfalls intrinsic of ED
treatment, securing a smooth journey through the tough passages of a
complex recovery. The concepts and protocols discussed in this book will
not guarantee unconditional and timely success in treating ED patients;
such guarantees are antithetical to healing ED, and to life itself. The
proposed guidelines are offered merely as approximations, as each
treatment situation demands unique responses to the unique requirements
of unique internal and external variables. Once having created the
structure of care, the therapist is free to diverge, extrapolate,
augment and accommodate to meet the unique needs and requirements of the
patient, therapist, family, recovery, and dynamic of the therapeutic
moment.
Doing What Works is the first and only book of its kind to:
" Offer an integrative start-to-finish, sequential, step-by-step system
to approaching and treating the ED patient and family; it does so
through the singular voice of a treatment expert who has facilitated
many hundreds of ED recoveries throughout the past four decades.
" Bridge the chasm between the worlds of science and practice in the
application of research outcomes to clinical practice through an
integration of treatment approaches.
" Offer ED professionals insights and opportunities for personal growth
as a prelude to furthering professional growth.
" Systematically provide guidelines for multi-disciplinary professional
team function through sequential stages of care.
" Introduce innovative treatment concepts in ED care that include the
"science" of human relationship and the mind/body connection, as
validated by the newest discoveries on the frontiers of research about
brain plasticity.
How to use this book
In the interest of space, I have limited my discussion to those aspects
of care that have particular relevance within the context of the
clinical encounter. Citations and resources provide the interested
reader the opportunity and motivation to pursue their own continued
learning in greater depth. My focus in this book is on the work of the
out-patient therapist functioning as part of a larger outpatient
treatment team, though the principles offered will be relevant to
in-patient clinical teams as well, and to all the disciplines that are
represented within the team.
Be aware that purely for purposes of convenience, throughout this book I
refer to the patient as 'she' and the practitioner as 'he.' Please
indulge this device, recognizing that though the majority of eating
disorder practitioners are female, at least one in ten eating disordered
patients is male. The information I present here pertains to patients of
all ages, to adults as well as children; because integrating parents
into the child's treatment and recovery process is so critical, the
majority of my references will be to child, adolescent and young adult
patients. Each chapter is designed to be read sequentially, or to stand
entirely on its own. If read sequentially, the book follows the order of
the diagnostic, treatment, recovery, and post-recovery processes,
tracing the evolution of these disorders from their inception through
the evolving stages of their recovery. Throughout every stage of the
process, the fabric of healing functions is intrinsically woven together
with a discussion about the clinician's unique use of self in evoking
and optimizing them.
An extensive use of case scenarios illustrates treatment concepts and
theories, making this book a source of 'virtual' case consultation for
professional readers who will inevitably see themselves and their
patients in the cases and personalities presented. These cases are
designed to stimulate contemplation and learning in the reader's
inquiring mind. In reading the case examples, you may have chosen a
different path. Because there is never one 'correct' solution to
problems of this complexity, the standard for measurement for success
will be the patient's continual movement forward towards goals that are
clearly intentional, purposeful, defined, directed and operational.
As readers become increasingly adept at treating these disorders, they
will discover that "re-reads" will offer an ever-increasing depth of
knowledge and understanding as so much of what this book brings to you
is dependent upon the professional experiences that you bring to it.
Where examples are cited from my own clinical practice, patients'
identities have been protected and incidents disguised through the use
of fictitious names and through changing circumstances.
Doing "what works" is doing whatever it takes to bring about healing
This book is a 'must read' not only for therapists, nutritionists, and
medical doctors, but also for patients, parents and families who need to
join forces with treating professionals to mentor their own or their
loved one's recovery. The author's reassuring voice resonates with 40
years of specialty experience and know-how, providing therapists the
permission, incentive, vision and confidence they need to become
self-starters within a demanding treatment process---and to help their
patients do the same. In the treatment of eating disorders, a great deal
is at stake. Clinicians are capable, and in fact obligated, to stop at
nothing to achieve their goals of helping patients and families to stop
at nothing in achieving theirs.
The bottom line in the treatment of ED becomes healing - complete and
sustainable. It is for us to learn how, when, and in what manner to put
together and offer the techniques and skills that we already know; how
to nuance the quality of our care-giving with mindful action, and
clearly defined intentionality; and how to make loving human connections
with our patients, brain to brain, soul to soul in connections that are
themselves truly healing. By impacting the patient's emotional
development, problem-solving, quality of life and physical function,
self-regulation and self care, the work we do holds the potential to
become transformational, saving and restoring lives and life quality
now, and for generations to come.